BOOKS CYSTIC FIBROSIS

SHORT LIST

 

Anderson, Denise, Cystic Fibrosis: Understanding the Disease, Managing Symptoms and Embracing Hope, Independently published, 2025

 

Byrnes, Isabel Stenzel, Anabel Stenzel, The Power of Two: A Twin Triumph over Cystic Fibrosis, Updated and Expanded Edition (Volume 1), University of Missouri,2014

 

Deford, Frank, Alex: The Life of a Child, Thomas Nelson, 1997

 

Gironimi, Jay, Can't Eat, Can't Breathe and Other Ways Cystic Fibrosis Has F#$%*d Me, CreateSpace Independent Publishing Platform, 2013

 

Horsley, Alex, Steve Cunningham, Cystic Fibrosis (ORML) (Oxford Respiratory Medicine Library), Oxford University Press, 2015

 

Lagasse, Dan, Doug Lagasse, Scars Tell Stories: From a Cystic Fibrosis and Heart/Double Lung Transplant Patient, Independently published, 2020

 

Levin, Ms. Chynna Bracha, Ms. Claire Wineland, Every Breath I Take, BusinessGhost, Inc., 2012

 

Lipman, Andy, Anthony Weiss, The CF Warrior Project: 65 Stories of Triumph against Cystic Fibrosis, Booklogix, 2019

 

Murnaghan, Janet, Saving Sarah: One Mother's Battle Against the Health Care System to Save Her Daughter's Life, St. Martin's Press, 2018

 

Orenstein, David M. MD, Jonathan E. Spahr MD, Cystic Fibrosis: A Guide for Patient and Family, LWW; Fourth edition, 2011

 

Sher, Yelizaveta MD, Anna M. Georgiopoulos MD, Facing Cystic Fibrosis: A Guide for Patients and Their Families, MGH Psychiatry Academy, 2019

 

Smith, Mallory, Salt in My Soul: An Unfinished Life, Random House Trade Paperbacks; Reprint edition, 2020

 

Thrush, Matthew, Total Gut Makeover: Cystic Fibrosis: 125 Recipes Proven To Be Neutral Or Beneficial For Relieving Cystic Fibrosis 21-Day Meal Plan Included With Alternative Medicine For Faster Recovery & Relief, EMPIRE Publishing, 2022

 

Trivedi, Bijal P., Breath from Salt: A Deadly Genetic Disease, a New Era in Science, and the Patients and Families Who Changed Medicine Forever, BenBella Books, 2020

Weeks, Lauren B., Growing Up Sick: How to Turn Your Kid's Scary Diagnosis into a High-Quality Life, Lauren B. Weeks, 2018

 

 

OTHERS

 

Byrnes, Isabel Stenzel, Anabel Stenzel, The Power of Two: A Twin Triumph over Cystic Fibrosis, Updated and Expanded Edition (Volume 1), University of Missouri, 2014

 

Filbrun, Amy G., Thomas Lahiri, Handbook of Cystic Fibrosis, Adis, 2016 edition 2016

 

Horsley, Alex, Steve Cunningham, Cystic Fibrosis (ORML) (Oxford Respiratory Medicine Library), Oxford University Press; 2nd edition, 2015

 

Lamella, Dr. Mark, Cystic Fibrosis: The Fast Guide On Everything You Need To Know About Cystic Fibrosis, Independently published, 2021